"Before You Judge my life, my past or my character. Walk in my shoes, walk the path I have traveled, live my sorrow, my doubts, my fear, my pain and my laughter. Remember, everyone has a story. When you've lived my life then you can judge me."

I am fine - It's a familiar mantra, one that rolls off the tongue with ease, yet carries the weight of unspoken worries and unexpressed feelings. When "I'm Fine" Is the Safest Answer - When people ask how I am? Not dramatically. Not consciously. It just happens. I reply with. “I’m fine.” “I’m grand.” “Sure, no point in complaining.”  The words come out before I’ve even checked in with myself. They’re a shield, the autopilot response kicks in. They close the door before anythi

Two women, two lives, one fight!  Pernilla Wallin Sweden & Siobhan McBarron Ireland Our Bodies, Our Disease, Our Choice. Two women, two...

Life has a way of catching us off guard. We casually go about our days thinking tomorrow will look much like today, same shit different...

Do not judge my life by the snapshots. The real story behind my smile is most of the time I am faking it! It sounds simple, even a little...

Highlighting the importance of mutual care and support. The caregiver needs to be Prioritised too…. In the journey of caregiving, we...

"Rare disease day may fall on February 28th but for me I must live it with it every day as I do not get the luxury of getting the other...

“Nobody has a monopoly on grief and loss; it is deeply personal. There is no place for ‘chief mourners’ attempting to undermine or...

Looking back on 2024 - By Siobhan Malone Mc Barron   What I have learnt so far – no one really gives a flying f8ck so go ahead continue...

The Inquiry Room - So, let us get some of the Questions out of the Way? So lately, my life has been all about advocating for the right to...

The World Federation Right to Die Conference 2024– Invited speaker Blog 10. I am currently trying to navigate my life with as much grace...

The big Debate, Assisted Dying, choosing dying with dignity – End of life Ireland!   “None of us have the right to tell another how much...

Dear younger self - Nothing could of ever prepared you for this journey! Dear younger self - Nothing could of ever prepared you for this...

I will always love you for better or worse, in sickness and in health for as long as we both shall live, these vows were exchange on our...

My Gospel according to me, My Life, my words, my journey! “ Journaling is like whispering to oneself and listening at the same time”. I...

Mirror Mirror on the wall - When you don’t recognise the girl looking back at you in the mirror anymore? It’s not a vanity thing as I’m...

"Sometimes, reaching out and taking someone’s hand is the beginning of a journey, and other times, its allowing another to take yours"....

Dear life, I’ve had enough bullshit to last a while, please can we take a break.

Please don’t judge, you don’t know what it took for someone to just get out of bed..... Please don’t judge, you don’t know what it took...

You know life is not fair when your friends are all out traveling and living their best lives, going on mini adventures, growing their...