So let me introduce myself as I am the face behind the keyboard! My name is Siobhan McBarron. I am a proud Galway Girl who fell in love with a Donegal man whom I travel the world and work with while trying to navigate my life living with a life debilitating disease. ​

 

I was diagnosed with muscular dystrophy, a degenerative neuromuscular disease in my early 20's even tho the symptoms first presented themselves in my late teenage years.. I decided to write this blog not for sympathy or pity but to show what the reality of living with a degenerative neuromuscular disease looks like.

 

This is my blog about my body, my feelings, and the challenges I face daily. It’s about two battles; the one between my mind and my body. It’s basically a clusterfuck of emotions, frustrations, physical pain and sometimes even mental torture.

 

So why now tell my story...…. You've got to read my blogs   to find out the answer.